Research Study Submission & Recruitment Request

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Lary’s Speakeasy Research Study Submission & Recruitment Request

Lary’s Speakeasy periodically receives requests from researchers seeking to share research opportunities with members of the laryngectomy community.

To help protect our members and ensure that research opportunities shared through Lary’s Speakeasy are appropriate, ethical, and relevant to our community, all research-related requests must be reviewed and approved prior to posting.

Submission of this application does not guarantee approval or distribution.

Approval to share a research opportunity through Lary’s Speakeasy means only that the organization has agreed to make information about the study available to its community. It does not constitute endorsement, sponsorship, recommendation, validation, or promotion of the study, its investigators, its institution, or its findings.

Approved Research Posting Process

If a research request is approved, Lary’s Speakeasy will work directly with the individual who submitted the request to develop and finalize the information that will be shared with the community.

All approved research opportunities will be posted by Lary’s Speakeasy through the organization’s official Facebook page. Researchers, investigators, study staff, or representatives are not permitted to independently post research studies, recruitment materials, survey links, or related research content within the Lary’s Speakeasy Facebook group.

Lary’s Speakeasy reserves the right to edit, shorten, format, or add organizational language to the proposed post while preserving the accuracy of the IRB-approved recruitment information.

Approval of a research request authorizes only the specific content and recruitment materials reviewed by Lary’s Speakeasy. Any additional posts, reminders, recruitment updates, extensions, or revised materials must be coordinated with and approved by Lary’s Speakeasy prior to publication.

Lary’s Speakeasy will determine the final wording, timing, format, and frequency of any research-related posts shared with its community.

Researcher Information

Name of person submitting request:

Professional title/credentials:

Institution or organization:

Department/program:

Email address:

Phone number:

Are you the Principal Investigator for this study?

Yes

If no, please provide the Principal Investigator’s information:

Principal Investigator:

Credentials/title:

Institution:

Email:

Study Information

Full title of the research study:

Please provide a brief, plain-language description of the study and its purpose.

What primary research question(s) or objectives does this study address?

What population is being studied?

Why are individuals within the Lary’s Speakeasy community relevant to this research?

Participant Eligibility

Please describe the study’s primary inclusion criteria.

Please describe any major exclusion criteria that prospective participants should know about.

Minimum participant age:

Geographic eligibility, if applicable:

Is participation limited to individuals who have undergone total laryngectomy?

Yes

If no, list other groups that are eligible

Are caregivers, family members, healthcare professionals, or other populations eligible?

Yes

If yes, please describe:

What Participation Involves

Estimated time commitment for participants:

Study format (select all that apply)

Online

Telephone

Video conference

In person

Medical/clinical setting

Other

Will participants receive compensation, reimbursement, gift cards, or other incentives?

Yes

If yes, please describe:

Are there any costs to participants?

Yes

If yes, please explain:

Are there any reasonably foreseeable risks, adverse reactions, discomforts, or potential harms associated with participation in this study?

Yes

If yes, please describe the potential risks or harms, including any physical, emotional, psychological, social, privacy-related, financial, or other concerns that may affect participants:

Please also describe what safeguards, monitoring procedures, or support resources are in place to reduce or respond to these risks.

Institutional Review Board / Ethics Approval

Research involving members of the Lary’s Speakeasy community must have appropriate ethical oversight when required.

Has this study received Institutional Review Board (IRB) or equivalent ethics committee approval?

Yes

Determined exempt by IRB/ethics committee

Approving institution:

IRB/Protocol number:

Approval date:

Expiration or continuing review date, if applicable:

Additional Required Documents for Submission

Please select below which copy of one of the following you will be attaching in email:

Current IRB approval letter

IRB exemption/determination letter

Equivalent institutional ethics approval documentation

If your institution has determined that IRB review is not required, please attach written documentation of that determination.

All materials should be consistent with the study’s IRB-approved recruitment materials when applicable.

Recruitment Materials

If your request is approved, we will send you a link to a secure page where you can upload your recruitment materials. These materials may include:

Recruitment flyer  
Participant information sheet  
Approved social media recruitment language  
Study webpage  
Survey/research link  
Investigator contact information

Upload recruitment flyer/material: * please include as an attachment in email.

Study or recruitment URL, if applicable: * please include as an attachment in email.

Proposed text you would like Lary’s Speakeasy to share with the posting:

Privacy and Participant Contact

How will interested individuals contact the research team or enroll in the study?

Will researchers request names, email addresses, medical information, or other personal information from Lary’s Speakeasy?

Yes

If yes, please explain:

Lary’s Speakeasy does not provide researchers with membership lists, member contact information, private Facebook group information, or other personally identifiable member information.

Researchers should provide a mechanism through which interested individuals may voluntarily contact the research team directly.

Requested Assistance from Lary’s Speakeasy

Please select what you are requesting (select all that apply):

Posting of an approved recruitment announcement in the Lary’s Speakeasy Facebook community

Placement of study information on the Lary’s Speakeasy website

Inclusion of research study within our monthly newsletter

Other

Requested recruitment period or study closing date:

Research Results

If the study is completed and results become publicly available, would you be willing to provide Lary’s Speakeasy with a plain-language summary of the study findings that can be utilized as a blog post for our website, Facebook group, newsletter, and other social media outlets and a link to the resulting publication?

Yes

To be determined (explain):

Lary’s Speakeasy encourages researchers working with the laryngectomy community to make study findings accessible to the community whenever appropriate.

Researcher Acknowledgment

By submitting this request, I understand and agree that: (select all to indicate agreement, failure to do so may result in rejection of the study)

Submission of this application does not guarantee that Lary’s Speakeasy will share or approve the study.

Lary’s Speakeasy reserves the right to decline, postpone, modify, discontinue, or remove research recruitment postings at its discretion.

Approval to distribute information about a study does not represent endorsement, sponsorship, recommendation, verification, or promotion of the research study, investigators, institution, products, treatments, or conclusions.

Lary’s Speakeasy is serving only as a communication platform through which members may learn that a research opportunity exists.

Participation in any research study is entirely voluntary and is a decision between the prospective participant and the research team.

Researchers may not independently recruit, solicit, directly message, or otherwise contact Lary’s Speakeasy members through the organization’s private community unless specifically authorized.

Researchers may not obtain, collect, copy, scrape, download, or request Lary’s Speakeasy membership information for recruitment purposes.

Any recruitment language or materials shared through Lary’s Speakeasy must remain consistent with IRB/ethics-approved materials when applicable.

Any substantive changes to the study, recruitment materials, eligibility criteria, Principal Investigator, IRB status, or study approval must be disclosed to Lary’s Speakeasy.

Lary’s Speakeasy may remove a research opportunity at any time if concerns arise regarding member safety, privacy, research practices, recruitment behavior, or consistency with the organization’s mission.

Name

Signature (typing your name will constitute as an electronic signature):

Date

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