Head And Neck Cancer Resources
SPOHNC – Support for People with Oral, Head and Neck Cancer
Support for People with Oral and Head and Neck Cancer (SPOHNC) is a nonprofit organization involved in the development of programs of support. As such it can have an enormous positive impact on meeting the psychosocial needs of patients as well as preserving, restoring and promoting physical and emotional health. SPOHNC is dedicated to raising awareness and meeting the needs of oral and head and neck cancer patients through its resources and publications. SPOHNC is on Facebook.
CancerCare® is the leading national organization dedicated to providing free, professional support services including counseling, support groups, educational workshops, publications and financial assistance to anyone affected by cancer. All CancerCare services are provided by oncology social workers and world-leading cancer experts.
Trusted, compassionate information for people with cancer and their families and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world’s cancer physicians and oncology professionals.
Our mission is to advance prevention, detection, treatment and rehabilitation of oral, head and neck cancers through public awareness, research, advocacy and survivorship. Through united and collaborative efforts, HNCA provides support to head and neck cancer patients throughout the year, supports ongoing research in head and neck oncology and educates children and adults in the disease process, treatment and prevention of oral, head and neck cancers. Head and Neck Cancer Alliance is on Facebook.
NFOSD – National Foundation of Swallowing Disorders
Our commitment is to provide patient hope and improve quality of life for those suffering from all types of swallowing disorders. By enhancing direct patient support, education, research and raising public, professional and governmental awareness, our mission is to advance the prevention and treatment of swallowing disorders in our lifetime.
As a 501(c)(3) non-profit organization, Lary’s Speakeasy’s mission is to provide resources to throat cancer and laryngectomee patients through social media outlets, free educational events around the country, and distribution of new, unopened laryngectomy supplies to speech-language pathologists who host meetings for their patients in need. Lary’s Speakeasy is on Facebook.
Pollen.com provides allergy information and forecasts you can use every day. If you suffer from allergies like hay fever, you need accurate, reliable, timely information that allows you to consistently manage your symptoms and take control of your life! Pollen.com is the revolutionary new online resource that provides you and all allergy sufferers with essential tools to do just that.
With reliable up-to-the-minute allergy forecasts that show the upcoming airborne allergen conditions in your local environment, Pollen.com prepares you for the day by offering you all the facts – at a glance! This is information that can help you maximize the quality of your life, and perhaps minimize visits to your physician or allergy specialist. This site is ad-supported (Flonase, Zyrtec, etc.); you can sign up for daily allergy alert emails that will show predicted pollen count and allergen sources (grasses, chenopods etc.) for your zip code area.
Founded in 1983 by Lyn Howard, MD and her patient, Clarence “Oley” Oldenburg, the Oley Foundation is a national, independent, non-profit 501(c)(3) organization that strives to enrich the lives of patients dependent on home intravenous nutrition (parenteral) and tube feeding (enteral) through education, advocacy, and networking. The Foundation also serves as a resource for consumer’s families, clinicians and industry representatives, and other interested parties. Programs are directed by the staff and guidance is provided by a board of dedicated professionals and patients.
HNC Facebook Groups
Facebook groups can be “Public”, “Open” or “Closed” – Public groups are just that, anyone can see them, post to them, nothing is “private”, if you post there, it could show up on your timeline/newsfeed. Open groups generally have some restrictions on who can post, and postings may or may not show up on your timeline/newsfeed. Closed Groups are “confidential”, not visible to anyone but members (other than their main page for signups, of course), posts do not show up on timeline/newsfeed. If you want to post a question but are concerned about someone seeing it, typically you can ask the group’s administrator to post it on your anonymous behalf.
- Survivors of Head and Neck Cancer (Closed Group)
Our mission is to serve as a source of emotional, physical and spiritual encouragement for those who have undergone treatment for any form of head and neck cancer, their families and caregivers.
- Head and Neck Cancer Survivors* (Closed Group)
Our Mission is to offer compassion, and emotional support for those who are affected by Head and Neck cancer. I find this group to be the most active and most helpful.
The Head and Neck Cancer Awareness page is devoted to raising awareness in the public arena…around the globe.
- Head and Neck Cancer Carers Support Group (Closed Group)
A group for anyone caring for someone with any form of Head & Neck Cancer. Seeing someone you love going through head and neck cancer can be a difficult experience. Being a carer can test your relationship in ways you didn’t imagine. This group is a place to come and share that journey with others going through it too, and is a safe place to keep it real.
- Tracheostomy (Closed Group)
To help assure the highest quality home care for children with tracheostomies. To provide needed tracheostomy information in order to ease some of the anxiety related to caring for a child with a trach. A well-informed family will usually experience less anxiety. To facilitate parent-to-parent networking and support. Information is necessary for parents of medically challenged children, however what often helps parents most is knowing that they are not alone.
This group is for medical necessity tube feeding individuals, their caregivers, their family and friends that make up their support network. I have created this group with the hopes of getting those who Tube Feed and their support or care givers an area where we can learn and educate themselves on what tube feeding is and the language and basic issues that impact the community. This is an open forum blog area dedicated to Adult tube feeding with emphasis on educating individuals about tube feeding. Specific tube feeding groups associated to this group and dedicated to resolving the issues depending on the type of feeding tube you have are the
- Adult GJ, J tube only Feeding Group (Closed Group)
- Adult Gtube Only Feeding Group (Closed Group)
- Adult Tube Feeding Group Sales and Donations (Closed Group)
- Feeding Tube Answers Group (Closed Group)